The following links provide access to hemophilia-related information, support and resources. We hope you will find them useful.
These links are provided for your convenience. However, they lead to external Web sites not created, managed, or maintained by Baxter. Baxter is not responsible for, and does not necessarily endorse, the opinions or therapeutics represented on these external pages.
http://www.thereforyou.com
This valuable site, sponsored by Baxter in conjunction with Advate.com, provides patients, caregivers, and healthcare professionals with helpful information and guidelines about topics ranging from the genetics of hemophilia to living with hemophilia. The site focuses on scientific information as well as lifestyle issues such as parenting, sports and exercise, kids' activities, and community involvement.
http://www.hfnconline.org
Nonprofit organization with newsletter, wine tasting, golf tournament, camping activities, and links to other sites.
http://www.famohio.org/
All-volunteer nonprofit organization that focuses on education, communication and networking, primarily in connection with a free annual July weekend retreat for families with bleeding disorders who receive care at Ohio's hemophilia treatment centers. Site is updated frequently and features a discussion forum with bulletin board and chat room.
http://www.hog.org
Nonprofit organization dedicated to providing education resources and support to serve the bleeding disorder community of Georgia.
http://www.hfmich.org
Nonprofit organization that provides educational and support programs, special events, advocacy, summer camps and related youth programs, medical services coordination, newsletter, and links to state legislature and regional hemophilia treatment center network.
http://www.louisianahemophilia.org
Nonprofit organization dedicated to serving the hemophilia community of Louisiana. Provides direct aid to its members, quarterly newsletters, and sponsors a golf tournament. Sponsors summer camp and sibling programs.
http://www.nebraskanhf.org
Nonprofit organization providing 24-hour information hotline, bimonthly newsletter, scholarships for hemophilia camps and meetings. Sponsors speakers at community organizations and schools.
http://www.hanj.org
Non-profit organization dedicated to serving the needs of the hemophilia community and supplying the means whereby persons with hemophilia may live a normal life and attain their fullest potential. This website provides links to medical information, to local treatment centers, to state legislature and to other hemophilia organizations. The site also offers patient education, support services, and lists of special events and fundraisers.
http://www.nohf.org/
Nonprofit organization serving families in a 24-county area. Provides information and referrals, counseling, newsletters, family activities, hemophilia advocacy, and links to other sites. Has links to FAMOHIO and other hemophilia sites and resources.
http://www.hemophilia.org
Foundation's website. Comprehensive resource for medical information and research, calendar of events and conferences, news, and other hemophilia issues.
http://www.wfh.org
Federation's website. Comprehensive resource. Offers Global Treatment Center Directory, extensive online library, hot topics, facts, "what's new" information, newsletters, product information, Hemophilia World Congress, and Nurses Committee of the WFH.
http://www.thebody.com
Site that endeavors to lower barriers between patients and clinicians, demystify HIV/AIDS and its treatment, improve patients' quality of life, and foster community through human connection. Searchable site has "what's new" information, insight from experts, chat, bulletin boards, government resources.
http://www.mindspring.com/~mattrk
Has information on von Willebrand's disease and provides links to other hemophilia and von Willebrand sites.
http://www.aspho.org
Society's website serving both medical professionals and patients. Dedicated to advancing knowledge in pediatric blood diseases and cancer. Annual scientific meeting, journal, online resources, and links.
http://www.kelleycom.com
Site founded by the mother of a child with hemophilia. Serves educational and advocacy needs of families with hemophilia. Furnishes medical, scientific, consumer, and child development information on a practical level. Has quarterly newsletters and magazines for children and their parents. Hemophilia sources available online.
http://www.bloodjournal.org
The journal of the American Society of Hematology (ASH).
http://www.blackwellpublishing.com/journals/bjh
http://www.blackwellpublishing.com/products/clh
http://www.medicine.ox.ac.uk/ohc
Includes searchable index.
http://www.karger.ch/journals/hae
International journal on hemostasis and thrombosis research. Includes free access to article abstracts, tables of contents, and online sample issue.
http://www.blackwellpublishing.com/journals/tme
http://www.projinf.org
Information about the diagnosis and treatment of HIV disease.
http://www.mcg.edu/som/medicine/Oncology/adulthemo.htm
The mission of the center is to improve the quality of life for all affected by hemophilia and related bleeding disorders by utilizing comprehensive care, counseling, educational programs, community service, and research. The center has an Adult and Pediatric Comprehensive Hemophilia Treatment Center. The Pediatric Comprehensive Hemophilia Treatment Center is a part of the Children's Medical Center at the Medical College of Georgia.
http://www.med.ufl.edu/hem-onc
The Hemophilia Center utilizes a multidisciplinary, comprehensive approach to patient care in treating hemophilia, von Willebrand's disease, and other coagulation diseases. Diagnosis, management, education, and prevention of complications are some of the services provided. Emphasis placed on early bleeding episode intervention and physical therapy.
http://www.rush.edu/patients/children/services/specialties/blood/hemophilia.html
Multidisciplinary pediatric hemophilia program offering comprehensive medical, surgical, psychiatric, and social services.
http://www.northshorelij.com/
Team approach to family-centered hemophilia treatment. The Center strives to foster a high level of autonomy in hemophilia management through continuous family and patient education.
http://jeffline.tju.edu
Center provides diagnosis and treatment, including comprehensive care, for adults with inherited and acquired bleeding disorders. Includes training and support of home therapy, social services support, and physician referral.
http://medicine.med.unc.edu/centers/ccbc.htm
The Carolina Cardiovascular Biology Center is a multidisciplinary, multidepartmental facility that serves as a focal point for interactions among scientists studying all aspects of cardiovascular disease. Areas of specific interest include atherosclerosis and other vascular diseases, angiogenesis and cardiovascular development, cardiovascular physiology, and diseases of hemostasis.
http://www.cdc.gov/
CDC website.
http://www.fda.gov/
FDA website.
For product recalls, alerts, and withdrawals (including blood products), search FDA's recall page. http://www.fda.gov/opacom/7alerts.html
http://www.nih.gov
NIH website.
Indications:
ADVATE [Antihemophilic Factor (Recombinant), Plasma/Albumin-Free Method] is indicated in hemophilia A (classical hemophilia) for the prevention and control of bleeding episodes and for perioperative management of patients with hemophilia A.
ADVATE is not indicated for the treatment of von Willebrand’s disease.
Important Safety Information:
Let your doctor know if you have had any previous allergic reactions to other factor VIII products or mouse or hamster proteins.
The most common related adverse reactions observed during the ADVATE clinical studies include: strange taste in mouth, headache, dizziness, and redness in the face.
There is a possibility that you can have an allergic reaction to ADVATE. Symptoms of an allergic reaction may include rash, hives, itching, tightness in throat or chest, difficulty breathing, feeling dizzy or light-headed, or a weak pulse. If you experience any of these symptoms, stop the infusion immediately and promptly contact your doctor.
Contact your doctor if you are not able to prevent or control bleeding episodes with your regular doses of factor VIII therapy.
